Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports CF Foundation, Beam Partner to Offer Free Online Exercise Classes Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports May 08, 2020 07:00 am | Ines Martins, PhD The Institute for Clinical and Economic Review (ICER) granted the therapy Trikafta the highest evidence rating (an “A”) for the treatment of cystic fibrosis (CF) in patients with either two copies the F508del mutation, or with one copy of the F508del mutation and a minimal function mutation in the CFTR gene (the gene defective in CF). ICER compared the efficacy […] The post Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports appeared first on Cystic Fibrosis News Today. Read More CF Foundation, Beam Partner to Offer Free Online Exercise Classes May 07, 2020 07:00 am | Mary Chapman The Cystic Fibrosis Foundation (CFF) is sponsoring free access to Beam, an online exercise platform that provides a variety of live and on-demand classes tailored for people with cystic fibrosis (CF), through Labor Day, Sept. 7. Complimentary registration through Beam’s website is available to adults with CF in the United States, according to a release provided by […] The post CF Foundation, Beam Partner to Offer Free Online Exercise Classes appeared first on Cystic Fibrosis News Today. Read More   Recent News AzurRx BioPharma Will Conduct Phase 2b Trial of MS1819 at TDN Clinical Sites Stop Making Yourself Sick About Other Sick People COVID-19 Outcomes in CF Patients Similar to General Public, Study Suggests CHMP Favors Expanding Kalydeco Label to Include Young Children With R117H Mutation NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts