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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator

Replies: 0

Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
What do you think of this news?

COVID-19 and Post-Traumatic Growth

May 13, 2020 02:00 am | Kevin Schaefer

Replies: 0
So I’m sure you’re all pretty tired of hearing about COVID. Paying attention to the news right now is exhausting.
However, I did want to share this column about COVID-19 and post-traumatic growth. The author, Brianna Albers, is a writer for one of our sibling sites. She’s been writing about mental health coping mechanisms, specifically related to Coronavirus anxiety. Her series on this subject is particularly applicable to people in rare disease communities.
This passage sticks out to me: “You don’t need to “take advantage” of quarantine by writing a book or painting the house. But you do need to act responsibly. For example, Animal Crossing: New Horizons is a great way to unwind. But are you spending the majority of your day playing video games? Are you taking a break, or are you numbing yourself to reality? We need to critically examine behavior patterns and recognize when self-care becomes indulgent and blurs to avoidance.”
Do you have any takeaways from this column? Do you think about this concept of post-traumatic growth?