Topics in the CF News Today Forum That You Might Have Missed

Cystic Fibrosis News Today Weekly Forum Digest Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed! New to our forums? Register here.   CF Patients Improve Lung Function with Elexacaftor Combo, Data Show Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator Replies: 0 Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here. What do you think of this news? Read More Columnist Shares Story of Raising CF Awareness May 18, 2020 02:00 am | Kevin Schaefer Replies: 0 Hey everyone! Hope you all had a safe and relaxing weekend. Check out Lara Govendo’s latest column here. She writes about CF awareness month, and what raising awareness means to her. This is a concept she’s wrestled with throughout her life, particularly in regards to telling friends and acquaintances about CF. Every time she “educates” someone about CF, awkward questions follow. This passage sticks out to me: “Words carry weight we don’t always comprehend. I cringe every time I mutter the words cystic fibrosis to a love interest, stranger, or friend. I know they’ll follow up with preconceived notions of how to respond to my diagnosis. The list of discomforting replies is endless: “When did you get that?” “I know someone who died of CF.” “Oh, wow, you’re 33 and still alive? Great job!” I know they don’t mean harm — most of the time — but that doesn’t prevent those arrows from piercing my heart.” Do you have any takeaways from this column? What does awareness mean to you? Read More Recent Posts Trikafta Very Effective CF Therapy, But Still Too Costly, ICER Reports COVID-19 and Post-Traumatic Growth Telemedicine One ‘Good’ Thing to Come Out of COVID Crisis, Doctors Say Phase 2b Trial of MS1819 Will Be Conducted at TDN Clinical Sites Motivation Monday: Setting Personal Goals