jueves, 28 de mayo de 2020

Topics in the CF News Today Forum That You Might Have Missed



Cystic Fibrosis News Today Weekly Forum Digest

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CF Patients Improve Lung Function with Elexacaftor Combo, Data Show

Jan 02, 2030 04:44 am | Cystic Fibrosis News Moderator



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Adding elexacaftor to tezacaftor and ivacaftor leads to marked improvements in lung function and quality of life in people with cystic fibrosis, data show. Read more about it here.
What do you think of this news?
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Columnist Reflects on Overcoming Death and Second Chances

May 27, 2020 02:05 am | Kevin Schaefer



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Hey everyone! Hope you all had a safe and relaxing holiday weekend.
Check out Brad’s latest column here. This is a great and moving piece about gleaning lessons from death. Brad reflects on almost dying before his transplant, and how he’s grown from this experience.
This passage sticks out to me: “While death isn’t romantic, it can be peaceful. In my time, I’ve known many who have passed — they’re either ready or they’re not. I wasn’t yet ready. I was ugly and bitter  in my death, outraged by the unfairness of this world.
Somehow, I survived.
The paradox of death is that it teaches you how to live. The tragedy of death is not everyone gets a chance to apply what they’ve learned.”
Do you have any takeaways from this column? Can you relate to this notion of gleaning lessons from death?
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