MARCH NEWSLETTER

Data DIY
Data DIY is a new Global Genes program comprised of a series of workbooks and companion in-person workshops that will prepare you to engage the health data landscape no matter where you and/or your organization are on your learning curve. Join us May 3rd for the first of three workshops focused on driving understanding, discovery, diagnosis and treatments for rare disease.
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RARE Drug Development Symposium
Global Genes, in partnership with theOrphan Disease Center at the University of Pennsylvania School of Medicine, is hosting the fourth annual RARE Drug Development Symposium designed to connect, educate and inspire rare advocates. Poster abstract submission is open now through April 5th.

Meet Up with Us on the Road
The rare disease leadership tour, RARE on the Road, begins in Boston on March 30th and also visits Denver, Birmingham, AL, and Sioux Falls, SD.

We're Hosting a Giveaway
With the help of Nebula Genomics, we’re giving away five Whole Genome Sequencing tests to our community. Learn More

Community Spotlight
The UC Irvine Men’s Volleyball team came together for World Rare Disease Day to raise awareness and highlight a very special fan.

Running for Rare
This year, as a charity partner of the OC Marathon, Global Genes will be running for rare. Interested in joining the team? Register here. If running is just not your thing, volunteer at our water station. Contact us for more information on volunteer opportunities.

Coming Up