Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Kalydeco’s Safety and Benefits Maintained Long-term in 2-to-5-year-olds with CF, Phase 3 Trial Shows 31 Days of CF: William’s Story The Work of ‘Project Fix Me’ Is Never Done Mutation in CFTR Gene Affects the Body’s Inner Clock, Mouse Study Suggests 31 Days of CF: Leila’s story Kalydeco’s Safety and Benefits Maintained Long-term in 2-to-5-year-olds with CF, Phase 3 Trial Shows May 24, 2019 07:00 am | Patricia Inacio, PhD Long-term treatment with Kalydeco (ivacaftor) is well-tolerated and efficient, with improvements in sweat chloride concentration, growth, and pancreas function maintained over 84 weeks in 2-to-5-year-old children with cystic fibrosis (CF), results from the Phase 3 KLIMB extension study show. Trial findings were published in the study, “An open-label extension study of ivacaftor in children with […] The post Kalydeco’s Safety and Benefits Maintained Long-term in 2-to-5-year-olds with CF, Phase 3 Trial Shows appeared first on Cystic Fibrosis News Today. Read More 31 Days of CF: William’s Story May 23, 2019 09:10 am | Luisa Palazola   View this post on Instagram   Day 3 of 31 Days of CF ⁣⁣⁣ Topic: Comedy and CF ⁣⁣⁣ ⁣⁣⁣ —⁣⁣⁣ ⁣⁣ ⁣It was a brisk Saturday night in New York City. I’m in the small basement of the basement of the Klimat Lounge, home of the Laughing Buddha Comedy Open Mic. It’s 2016 […] The post 31 Days of CF: William’s Story appeared first on Cystic Fibrosis News Today. Read More The Work of ‘Project Fix Me’ Is Never Done May 23, 2019 09:00 am | Elly Aylwin-Foster I’m restless. My eyes are red-rimmed from late-night Google searches. I can’t sleep, in part thanks to CF symptoms, in part because of a mind that’s running too hot, too fast. In daylight, too, I’m preoccupied. Each time I sit down to start a task I get drawn down a different path. The thoughts appear, […] The post The Work of ‘Project Fix Me’ Is Never Done appeared first on Cystic Fibrosis News Today. Read More Mutation in CFTR Gene Affects the Body’s Inner Clock, Mouse Study Suggests May 23, 2019 07:00 am | Patricia Inacio, PhD A mouse model carrying the most common mutation in the CFTR gene (the gene defective in patients with cystic fibrosis) shows disturbances in genes regulating the sleep cycle known as the circadian clock. The study “Dysregulation of Circadian Rhythm Gene Expression in Cystic Fibrosis Mice” was published in the Journal of Circadian Rhythms. Evidence shows that […] The post Mutation in CFTR Gene Affects the Body’s Inner Clock, Mouse Study Suggestsappeared first on Cystic Fibrosis News Today. Read More 31 Days of CF: Leila’s story May 22, 2019 11:21 am | Luisa Palazola View this post on Instagram Day 3 of 31 Days of CF ⁣ Topic: Adolescence, grief, and mental health Hello! My name is Leila, I am 15, and I have CF! I am here to write about the mental health side of Cystic Fibrosis, and how to deal with losing a family member with CF […] The post 31 Days of CF: Leila’s story appeared first on Cystic Fibrosis News Today. Read More   Recent News Specific Peptide May Lower Antibiotic Resistance of P. aeruginosa Bacteria, Study Reports 31 Days of CF: Sarah’s Story Incidence of CF-related Diabetes Stable in Pediatric CF, Canadian Study Finds Find Out How You Fit into the CF Community 31 Days of CF: Micah’s Story