Informed Consent
Informed Consent in the Age of Next Generation Sequencing - March 16, 2015
Informed consent and health literacy: Workshop summary,
Institute of Medicine Workshop Report, March 16, 2015
Institute of Medicine Workshop Report, March 16, 2015
Enduring and emerging challenges of informed consent.
Grady Christine et al. N. Engl. J. Med. 2015 Feb 26. (9) 855-62
Grady Christine et al. N. Engl. J. Med. 2015 Feb 26. (9) 855-62
National Human Genome Research Institute: Informed consent resources for genomics research
NHGRI updates online resource on informed consent for genomics research, by Raymond MacDougall, Feb 4
by Raymond MacDougall, Feb 4
Next-generation sequencing-based genome diagnostics across clinical genetics centers: implementation choices and their effects.
Vrijenhoek T, et al. Eur J Hum Genet. 2015 Jan 28.
Vrijenhoek T, et al. Eur J Hum Genet. 2015 Jan 28.
The emerging need for family-centric initiatives for obtaining consent in personal genome research.
Minari J, et al. Genome Med. 2014 Dec 17;6(12):118.
Minari J, et al. Genome Med. 2014 Dec 17;6(12):118.
NIH policy supports broader sharing of genomic data, strengthens informed-consent rules: Research participants must give consent for secondary sharing, even if data are de-identified.
Am J Med Genet A. 2015 Jan;167(1):viii-ix.
Am J Med Genet A. 2015 Jan;167(1):viii-ix.
Researchers' views on informed consent for return of secondary results in genomic research.
Appelbaum PS, et al. Genet Med. 2014 Dec 11.
Appelbaum PS, et al. Genet Med. 2014 Dec 11.
Genetic screening and testing in an episode-based payment model: preserving patient autonomy.
Sutherland S, et al. Obstet Gynecol. 2014 Nov;124(5):987-91
Sutherland S, et al. Obstet Gynecol. 2014 Nov;124(5):987-91
Testing an online, dynamic consent portal for large population biobank research.
Thiel DB, et al. Public Health Genomics. 2015;18(1):26-39. doi:
Thiel DB, et al. Public Health Genomics. 2015;18(1):26-39. doi:
Informed consent and ethical re-use of African genomic data.
Wright G, et al. Hum Genomics. 2014 Oct 22;8(1):18.
Wright G, et al. Hum Genomics. 2014 Oct 22;8(1):18.
Obtaining informed consent for clinical tumor and germline exome sequencing of newly diagnosed childhood cancer patients.
Scollon S, et al. Genome Med. 2014 Sep 17;6(9):69
Scollon S, et al. Genome Med. 2014 Sep 17;6(9):69
The challenge of informed consent and return of results in translational genomics: empirical analysis and recommendations.
Henderson Gail E et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 (3) 344-55
Henderson Gail E et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2014 (3) 344-55
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