jueves, 29 de noviembre de 2018

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page



New Articles For BioMed Central:

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases

REVIEW

Patient and observer reported outcome measures to evaluate health-related quality of life in inherited metabolic diseases: a scoping review

Carlota Pascoal, Sandra Brasil, Rita Francisco, Dorinda Marques-da-Silva, Agnes Rafalko, Jaak Jaeken, Paula A. Videira, Luísa Barros and Vanessa dos Reis Ferreira
Orphanet Journal of Rare Diseases 2018, 13:215 | Published on: 28 November 2018

RESEARCH

Oncologic orphan drugs approved in the EU – do clinical trial data correspond with real-world effectiveness?

Yvonne Schuller, Marieke Biegstraaten, Carla E. M. Hollak, Heinz-Josef Klümpen, Christine C. Gispen-de Wied and Violeta Stoyanova-Beninska
Orphanet Journal of Rare Diseases 2018, 13:214 | Published on: 28 November 2018

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