Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: CF-related Diabetes Affects Girls More Often and at Younger Age than Boys, European Study Shows A Rare Disease Film Festival Made Me Ponder Our Future Fight for Others UI Researchers Develop Breakthrough Approach to Gene Therapies for Respiratory Diseases CF-related Diabetes Affects Girls More Often and at Younger Age than Boys, European Study Shows Nov 20, 2019 07:00 am | Marta Figueiredo Girls with cystic fibrosis-related diabetes (CFRD) are exposed to risk factors of early death — including chronic infections, poor lung function, and poor nutrition — at a significantly higher proportion and younger age than boys, a large European study shows. The findings highlight the importance of early diagnosis and effective treatment of CFRD among people with cystic […] The post CF-related Diabetes Affects Girls More Often and at Younger Age than Boys, European Study Shows appeared first on Cystic Fibrosis News Today. Read More A Rare Disease Film Festival Made Me Ponder Our Future Fight for Others Nov 19, 2019 09:00 am | Brad Dell I don’t write much about my work at BioNews Services, which publishes Cystic Fibrosis News Today. I guess doing so seems a bit awkward since I’m a senior director at the company. In my gig, I head the columns division, which publishes patient and caregiver voices across dozens of rare disease news websites. Through BioNews, I […] The post A Rare Disease Film Festival Made Me Ponder Our Future Fight for Others appeared first on Cystic Fibrosis News Today. Read More UI Researchers Develop Breakthrough Approach to Gene Therapies for Respiratory Diseases Nov 19, 2019 07:00 am | Alice Melão, MSc A new, more efficient method for delivering gene therapies to lung tissues — based on tiny engineered proteins, called peptides —is creating therapeutic opportunities for people with diseases like cystic fibrosis, chronic obstructive pulmonary disease or COPD, and asthma. The potential of these new delivery tools was described in the study “Engineered amphiphilic peptides enable […] The post UI Researchers Develop Breakthrough Approach to Gene Therapies for Respiratory Diseases appeared first on Cystic Fibrosis News Today. Read More Recent News Starting Trikafta with Hope for the CF Community Discovered Bacteria ‘Wars’ May Lead to New Antimicrobial Treatments for CF, Study Suggests Patients Adhere Well to CFTR Therapies But High Costs Could Undermine Use, Pharmacy Study Says Vertex Reaches Agreement for CF Medications in Northern Ireland and Wales Rare Disease Film Festival Highlights Patient and Researcher Unity