Last Posted: Nov 15, 2019
- "I didn't have anything to decide, I wanted to help my kids"-An interview-based study of consent procedures for sampling human biological material for genetic research in rural Pakistan.
Kongsholm Nana Cecilie Halmsted et al. AJOB empirical bioethics 9(3) 113-127 - Consent for newborn screening: screening professionals' and parents' views.
Ulph F et al. Public health 2019 Nov 178151-158 - A framework for tiered informed consent for health genomic research in Africa.
Nembaware Victoria et al. Nature genetics 2019 Oct - Informing New Mothers about Newborn Screening Bloodspot Repositories during Postpartum Hospitalization.
Newcomb Patricia et al. MCN. The American journal of maternal child nursing 44(6) 332-337 - Clinical significance of TP53 variants as possible secondary findings in tumor-only next-generation sequencing.
Yamamoto Yoshihiro et al. Journal of human genetics 2019 Oct - Family Screening and Genetic Counseling.
Perge Pál et al. Experientia supplementum (2012) 2019 11129-32 - Informed Consent in the Genomics Era.
Rego Shannon et al. Cold Spring Harbor perspectives in medicine 2019 Sep - Challenges to informed consent for exome sequencing: A best-worst scaling experiment.
Gore Rachel H et al. Journal of genetic counseling 2019 Sep - Cancer Genetic Counseling-Current Practice and Future Challenges.
Schienda Jaclyn et al. Cold Spring Harbor perspectives in medicine 2019 Sep - Education versus screening: the use of capacity to consent tools in psychiatric genomics.
Kong Camillia et al. Journal of medical ethics 2019 Sep
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