Cystic Fibrosis Weekly Update

Contents:

The Power of Escapism

Mar 04, 2019 09:00 am | Tré LaRosa

One of the first fiction books I read in adulthood was a book called “The Amazing Adventures of Kavalier & Clay,” by Michael Chabon. The story of how I came across “Kavalier & Clay” begins in high school. In my senior literature class, we had to write a research paper on a couple of books […]
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European HIT-CF Project to Explore ELX-02 as Treatment for Rare CF Mutations

Mar 04, 2019 08:00 am | Alice Melão

Eloxx Pharmaceuticals will explore the potential of its lead investigational drug candidate, ELX-02, as a treatment for patients with cystic fibrosis (CF) caused by rare nonsense genetic mutations, in new trials integrated in the European HIT-CF project. “We are extremely excited to be participating in the HIT-CF research project which has the potential to lead to […]
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CF Family Friday: Polina and Nellie Bykova’s Sister Power

Mar 01, 2019 03:00 pm | Luisa Palazola

Hi, I’m Luisa Palazola, the Cystic Fibrosis News community manager. This week for Family Friday we spoke to sisters Polina and Nellie Bykova. Polina is 20 years old and has cystic fibrosis (CF). Nellie is 19 years old and doesn’t have CF. Our conversation covered immigrant experiences, hospitalizations, family support and sacrifices, and sisterhood. On moving to […]
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