Last Posted: Aug 26, 2020
- “My disability has become an ability”
E Manna, Nature Medicine, August 24, 2020 - Real Stories: Living with Spina Bifida
CDC, 2019 - How I wish people talked about living with a BRCA mutation
E Stallings, Hello Giggles, June 26, 2019 - When a Rare Mutation Causes a Rare Disease: Jacob’s Story
R Lewis, PLOS Blogs, June 20, 2019 - When a Rare Mutation Causes a Rare Disease: Jacob�s Story
R Lewis, PLOS Blogs, June 20, 2019 - 'Out of the Blue' Diagnosis Linked to a Family History of Cancer Now Empowers Others
S Friedman, Cure, June 12, 2019 - 7 Things I Wish I Had Known About Being 'Rare'
K Moore, The Mighty, March 2019 - Avery Watts and family fighting for her heart
J Heim, HM Media, March, 2019 - Real Stories from People Living with Hemophilia
CDC, 2019 - I Got A Double Mastectomy After A Genetic Test. Then I Learned The Results Were Wrong.
M Boesen, Huffington Post, February 22, 2019
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