Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy The Painful Truth About Being a Sick Parent How to Gain Weight: 7 Less Traditional Methods Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy Aug 19, 2020 07:00 am | Forest Ray Enterprise Therapeutics announced that dosing has begun in a Phase 1 clinical trial testing ETD002, a potential inhaled treatment for cystic fibrosis (CF). The study (NCT04488705) will assess the safety and tolerability of EDT002 in ascending single and multiple doses in healthy people as compared with a matching placebo. It is due to conclude in December. “We are […] The post Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy appeared first on Cystic Fibrosis News Today. Read More The Painful Truth About Being a Sick Parent Aug 18, 2020 03:00 pm | Bailey Vincent Being a parent sucks sometimes. We talk about how we “don’t talk about this enough,” but then we sort of do through rose-colored glasses and funny and frustrated columns such as these. “How come you never write honestly about what it’s like to be a sick person raising kids?” my partner asked today, after I […] The post The Painful Truth About Being a Sick Parent appeared first on Cystic Fibrosis News Today. Read More How to Gain Weight: 7 Less Traditional Methods Aug 18, 2020 09:00 am | Brad Dell “I wish I had that problem!” If you’re pancreatic insufficient, you know what that dreaded joke is in response to. Gaining weight ain’t easy when your pancreas doesn’t function properly, your lungs and heart pump much too rapidly, and you’re slammed by side effects like appetite loss or nausea. My weight isn’t ideal, but I’ve […] The post How to Gain Weight: 7 Less Traditional Methods appeared first on Cystic Fibrosis News Today. Read More Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs Aug 18, 2020 07:00 am | Ines Martins, PhD The nonprofit Claire’s Place Foundation has launched a pilot program to help 15 adults with cystic fibrosis (CF) or caregivers of patients acquire flexible employment, enabling them to continue working while dealing with the disease’s daily needs. The Work Proudly Program aids people in choosing careers and gaining the skills to be competitive in the job market, enabling them […] The post Work Proudly Program to Help 15 CF Patients or Caregivers Find Flexible Jobs appeared first on Cystic Fibrosis News Today. Read More Recent News First Patients Enrolled in Phase 2b Trial Testing MS1819 for Exocrine Pancreatic Insufficiency in CF A Giant Win After a Big Loss MS1819-PERT Combo Shows Benefits for CF Patients With EPI in Phase 2 Trial First Participants Dosed in Early Clinical Trial of Inhaled Therapy ARO-ENaC Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment