Cystic Fibrosis Weekly Update

Contents:

Scottish Government and Vertex Strike Deal for Access to Kaftrio

Aug 05, 2020 07:00 am | Marisa Wexler MS

The Scottish Government and Vertex Pharmaceuticals have reached a deal to make Vertex’s Kaftrio (ivacaftor/tezacaftor/elexacaftor) available for people with cystic fibrosis (CF) once the medication receives its European license. This follows similar agreements in the three other U.K. countries, England, Wales, and Northern Ireland. According to the U.K. Cystic Fibrosis Trust, through these four agreements an estimated 90% […]
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Putting Body Image Issues Behind Me: A #ScarPositive Story

Aug 04, 2020 03:00 pm | Bailey Vincent

body image, walk, pre-existing condition, perspective, slowing down

This is my back. My back is old. I’m not old … but my back is. Or at least that’s what my radiologist said after reviewing CT scans of a recent myelogram, in which serious degeneration raised cause for alarm. I didn’t catch all the details. It won’t heal itself and something must be done […]
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Higher Prevalence of Oral Candida Fungus Found in CF Patients

Aug 04, 2020 07:30 am | Steve Bryson PhD

People with cystic fibrosis (CF) are more frequently infected with oral Candida fungus and carry a higher number of fungi compared to healthy individuals, a study has found. All fungal species identified in the study’s CF patients were susceptible to currently available anti-fungal medications. The study, “Oral prevalence and anti-fungal susceptibility of Candida species in […]
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An Open Letter to the Chronically Ill Professional

Aug 03, 2020 03:00 pm | Wendy Caroline

Dear Chronically Ill Professional, You are enough. It’s easy to look around and compare yourself to your peers. Maybe you didn’t get that promotion because you were sitting in doctors’ appointments instead of working overtime. Perhaps you aren’t living that “hustle” lifestyle because you need to slow down and rest. That doesn’t make you less […]
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