LOS PACIENTES AVANZANDO EN INVESTIGACIÓN
The International Niemann Pick Disease Registry (INPDR) aims to:
- Share Information - Collecting anonymised patient data from across the world in a consistent format.
- Gain Knowledge and Insight - establishing the natural history of NP diseases.
- Improve Research - coordinating research efforts globally.
- Enable Rapid Diagnostics - facilitating equitable access to state of the art diagnostic tests.
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