EVENTOS DE EURORDIS
This is the official video for #RareDiseaseDay 2017! Research: With research, possibilities are limitless!
Rare Disease Day is a patient-led campaign that brings together millions of patients, families, carers, medical professionals, policy makers and members of the public in solidarity – everyone can get involved!
The Rare Disease Day 2017 theme is research and slogan “With research, possibilities are limitless”. Rare disease research is crucial to providing patients with the solutions they need, whether it is a treatment, cure or improved care. The tenth edition of Rare Disease Day will see people from all over the world come together to advocate for more research on rare diseases.
People living with a rare disease are sometimes unable to find answers and medical solutions they need, often because of a lack of research. To illustrate this frustration, this year’s video draws a parallel with a routine that many of us go through multiple times a day – searching for an answer on the internet. The video highlights how isolating it is when you search on the internet but receive the response ‘your search had no results’.
Share the video to become part of the international campaign!
EURORDIS-Rare Diseases Europe is delighted to announce its 20th anniversary and the sixth edition of the EURORDIS Awards & Black Pearl Evening.
This important fundraising event for the rare disease community will take place on 21 February 2017 at the Hotel Le Plaza in Brussels, Belgium.
Every year this event brings together over 200 people from across the world, including public officials, patient advocates, clinicians, biotech and pharmaceutical executives, rare disease researchers, media, celebrities and philanthropists.
What is the Black Pearl Evening?
Terkel Andersen, President of EURORDIS-Rare Diseases Europe
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