herenciageneticayenfermedad: EURORDIS - La voz de los Pacientes con Enfermedades Raras en Europa

sábado, 28 de enero de 2017

EURORDIS - La voz de los Pacientes con Enfermedades Raras en Europa

EURORDIS - La voz de los Pacientes con Enfermedades Raraas en Europa

Eurordis, Rare Diseases Europe

La voz de los Pacientes con
Enfermedades Raras en Europa

EL RINCÓN DEL SOCIO

Inscríbete en la Reunión Anual de Miembros de EURORDIS 2017, 19 – 20 de mayo, Budapest

Save the date: EURORDIS Membership Meeting 2017 Budapest

The next EURORDIS Membership Meeting (EMM 2017) will take place in Budapest, Hungary at the Danubius Hotel Helia from 19 - 20 May 2017.

The working language of the meeting will be English, with simultaneous translation of the Plenary Session on Friday into Hungarian.

Read the draft programme here.

Registration

Register via the form below.

1 person per patient organisation (EURORDIS members only): Free
Additional representative from patient member organisations: 125€ per person
Other patient organisations, researchers, healthcare professionals and academia: 150€
Healthcare industry representative: 500€

The registration fee covers access to the meetings, coffee breaks and lunch Friday 19 and Saturday 20, as well as the Welcome Dinner Friday evening.

Fellowships

EURORDIS is once again offering patient fellowships for up to 40 patient advocates. The deadline for applications is 28 February 2017.

More information is available here.
Download the application form here.
See the evaluation criteria here to obtain a patient fellowship.

Soapbox session:

6 patient representatives will have the opportunity to present Innovative strategies, approaches, services or projects that could potentially be useful to other patient groups in a soapbox session on Saturday 20 May. If you are interested in participating, please email anja.helm@eurordis.org. Each person will have 5 minutes to present (no slides will be allowed).

Hotels

We encourage you to book your hotel rooms as soon as possible.

Danubius Hotel Helia
Kárpát utca 62-64., 1133 Budapest, Hungary,

Phone: +36-1-889-5800,

Hotel room rates:
Single room: 98,-EUR/ room /night
Double room: 98,-EUR/ room /night
Danube view: 10,-EUR/ room /night

The above prices are inclusive of buffet breakfast, WiFi internet access throughout the hotel, unlimited use of the Danubius Premier Fitness Club
Click here to book your room with the Eurordis EMM rate
The hotel has wheelchair-adapted rooms. Please contact emilie.zingg@eurordis.org to book one of these rooms.
For directions from the airport to the hotel including estimated costs and phone number for a taxi service adapted for wheelchair users and for more hotel options, please download our Practical Information document.

Satelite Meetings

This 2-day event, is preceded by the following satellite meetings on May 18:

ePAG representatives meeting & leadership workshop (closed meeting, email lenja.wiehe@eurordis.org for more details)
Council of National Alliances meeting (closed meeting, email anja.helm@eurordis.org for more details)

EURORDIS Board of Directors elections

Friday 19 May, will begin with the EURORDIS Annual General Assembly, during which four directors will be elected to the Board of Directors.

If you represent a member organisation of EURORDIS (full members only) and would like to apply for a seat on the board, please contact anja.helm@eurordis.org before 26th April 2017.

We look forward to seeing you in Budapest!