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Cystic Fibrosis Weekly Update Contents: Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment Does Everyone With CF Have Body Dysmorphia? New Streaming Channel Showcases Rare Disease Films Research May Explain Why Different CF Bacteria Infect at Certain Ages Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment Aug 12, 2020 07:00 am | Forest Ray Cystic Fibrosis Ireland has set aside up to €120,000 ($141,150) to provide personal protective equipment (PPE) to people with cystic fibrosis (CF) in the Republic of Ireland. Those interested may apply for individual grants of €100 per applicant through Aug. 22. Applications to the PPE grant should be completed online at www.cfireland.ie/ppe-grant. “People with cystic […] The post Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment appeared first on Cystic Fibrosis News Today. Read More Does Everyone With CF Have Body Dysmorphia? Aug 11, 2020 03:00 pm | Bailey Vincent I have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to upper-range BMI is a goal for the chronically ill, especially in a world rife with diet culture and diminutive proclivities. But it is commonplace in CF […] The post Does Everyone With CF Have Body Dysmorphia? appeared first on Cystic Fibrosis News Today. Read More New Streaming Channel Showcases Rare Disease Films Aug 11, 2020 07:15 am | Hawken Miller When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films to an audience.  Co-founders Daniel DeFabio and Bo Bigelow, who are both fathers of children with rare diseases, hit upon the idea to take Disorder: […] The post New Streaming Channel Showcases Rare Disease Films appeared first on Cystic Fibrosis News Today. Read More Research May Explain Why Different CF Bacteria Infect at Certain Ages Aug 11, 2020 07:00 am | Patricia Inacio, PhD New research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults. The findings show that P. aeruginosa loses the ability to use its toxic weaponry after it adapts to the lungs, allowing Burkholderia cepacia complex to establish an infection. The study “Host Adaptation Predisposes Pseudomonas […] The post Research May Explain Why Different CF Bacteria Infect at Certain Ages appeared first on Cystic Fibrosis News Today. Read More Recent News CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund Screening Finds Fewer Newborns in Ireland With CF Than Expected ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug Scottish Government and Vertex Strike Deal for Access to Kaftrio Putting Body Image Issues Behind Me: A #ScarPositive Story