lunes, 17 de agosto de 2020

Cystic Fibrosis News Today Daily Digest

 

Cystic Fibrosis Weekly Update


Contents:

Cystic Fibrosis Ireland Establishes Grants for Personal Protective Equipment

Aug 12, 2020 07:00 am | Forest Ray



grants for PPECystic Fibrosis Ireland has set aside up to €120,000 ($141,150) to provide personal protective equipment (PPE) to people with cystic fibrosis (CF) in the Republic of Ireland. Those interested may apply for individual grants of €100 per applicant through Aug. 22. Applications to the PPE grant should be completed online at www.cfireland.ie/ppe-grant. “People with cystic […]
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Does Everyone With CF Have Body Dysmorphia?

Aug 11, 2020 03:00 pm | Bailey Vincent



body image, walk, pre-existing condition, perspective, slowing downI have gained weight. I’ve been trying to gain weight for years, kindly encouraged by my CF clinic. Many might find it odd that aiming for a mid- to upper-range BMI is a goal for the chronically ill, especially in a world rife with diet culture and diminutive proclivities. But it is commonplace in CF […]
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New Streaming Channel Showcases Rare Disease Films

Aug 11, 2020 07:15 am | Hawken Miller



When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a new way to bring the films to an audience.  Co-founders Daniel DeFabio and Bo Bigelow, who are both fathers of children with rare diseases, hit upon the idea to take Disorder: […]
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Research May Explain Why Different CF Bacteria Infect at Certain Ages

Aug 11, 2020 07:00 am | Patricia Inacio, PhD



bacteria and lung infectionsNew research unveils why the bacteria Pseudomonas aeruginosa cause sustained infections in younger cystic fibrosis (CF) patients, while the bacteria Burkholderia cepacia complex infects patients as teenagers and adults. The findings show that P. aeruginosa loses the ability to use its toxic weaponry after it adapts to the lungs, allowing Burkholderia cepacia complex to establish an infection. The study “Host Adaptation Predisposes Pseudomonas […]
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Recent News

CF Foundation Invests $20M to Accelerate CF Programs in Partnership With Longwood Fund
Screening Finds Fewer Newborns in Ireland With CF Than Expected
ELX-02, Potential Therapy for CF Nonsense Mutations, Named Orphan Drug
Scottish Government and Vertex Strike Deal for Access to Kaftrio
Putting Body Image Issues Behind Me: A #ScarPositive Story

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