Cystic Fibrosis News Today Daily Digest

Cystic Fibrosis Weekly Update Contents: CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF A New Way to Hurt: Are You ‘Healthist’? Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF Aug 26, 2020 07:00 am | David Melamed, PhD The Cystic Fibrosis Foundation (CFF) has awarded nearly $15 million to 33 organizations that are researching how to improve outcomes for cystic fibrosis (CF) patients who are battling infections. The awards fall under the CFF’s Infection Research Initiative, a large-scale effort to provide $100 million in funding for research into CF and infections through 2023. […] The post CF Foundation Awards Nearly $15 Million to Groups Researching Infections and CF appeared first on Cystic Fibrosis News Today. Read More A New Way to Hurt: Are You ‘Healthist’? Aug 25, 2020 03:00 pm | Bailey Vincent “I’m worried about your health.” I have heard this more times than I can count. It’s normally a guise for criticism of how I’m eating, how I approached my pregnancies, or how I look. For a long time, I tried to appreciate the concern. That’s how we show love, right? The problem is that fretfulness […] The post A New Way to Hurt: Are You ‘Healthist’? appeared first on Cystic Fibrosis News Today. Read More Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input Aug 25, 2020 11:45 am | Forest Ray Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the search for new medicines for rare disorders and incorporating more patient input into research. The goal is to help the pharmaceutical industry deliver innovative new therapies faster and smarter, the London-based company said. Xperiome works by using […] The post Xperiome Platform Aims to Streamline Searches for Rare Diseases, Gain Patient Input appeared first on Cystic Fibrosis News Today. Read More Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise Aug 25, 2020 07:00 am | Forest Ray Poorer oxygen uptake and transport may underlie skeletal muscle differences that affect exercise tolerance in children and adolescents with cystic fibrosis (CF) relative to healthy peers, a recent study suggests. The study, “Tissue oxygenation in peripheral muscles and functional capacity in cystic fibrosis: A cross‐sectional study,” was published in the journal Experimental Physiology. Problems in the […] The post Muscles of CF Youth Consume Oxygen Faster Than Peers, Affecting Exercise appeared first on Cystic Fibrosis News Today. Read More Recent News Vertex Triple Combo, Kaftrio, Approved for CF Patients in EU With F508del Mutation NuvoAir Home Platform Classified as Class Im Medical Device EveryLife Foundation Launches Scholarship Fund for Rare Disease Community in US FDA Grants Orphan Drug Designation to KB407, Potential Gene Therapy for CF Dosing Begins in Phase 1 Trial of ETD002, Potential CF Inhalation Therapy