EURORDIS TV | www.eurordis.org

EURORDIS TV | www.eurordis.org



The Voice of Rare Disease
Patients in Europe

NEWS & CURRENT ISSUES CHANNEL

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Why Patients' Voices Matter17.01.201711:07

EUPATI Interview with Francois Houÿez12.12.201611:06

EUPATI Interview with Virginie Hivert12.12.20166:15

EUPATI Interview with Nancy Hamilton12.12.20166:26

LIVING WITH A RARE DISEASE CHANNEL

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SBS-IF film series: Joel7.09.20174:18

International Ataxia Awareness Day 2017 in Pakistan by Bin Adam Foundation28.09.201721:31

Duchenne - A 360 documentary5.09.20178:19

Ella's Communication14.06.20172:06

PATIENT GROUPS CHANNEL

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Good Morning Peyton23.10.20175:25

#RaroSeríaRendirse - Let’s find a cure for Tay-Sachs27.02.20171:26

Birth of DEBRA Croatia21.10.201630:27

Wacean [English]22.06.20161:31

EURORDIS EVENTS CHANNEL

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Genome Editing Workshop: 1. What is genome editing? The science and beyond25.07.20171:35:03

Genome Editing Workshop: 2. Ethical, legal and social issues25.07.201729:33

Genome Editing Workshop: 3. Perspectives of the biotech sector and regulatory aspects25.07.201754:56

Livestream of the EURORDIS Awards 20178.03.20171:03:40

EXPLAINING RARE DISEASES CHANNEL

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HumanTimebombs with English subtitles9.03.201740:00

Conquistando Escalones celebrates the Rare Disease Day28.02.20175:11

We are the Families - Fighting to cure MECP2 Duplication Syndrome together!25.12.20152:33

What is EB animation15.01.20162:27

RESEARCH CHANNEL

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Why are physician-scientists crucial to our future? | Dianna Milewicz | TEDxHouston19.11.201515:40

Bridging patients and researchers to advance research in rare diseases.16.02.20106:38

Opening Speech by Robert Madelin to European Workshop on Rare Disease Research18.03.20105:58

Research: Cells from Niemann Pick C1 patients used to combat Ebola virus24.08.20113:48

RARE DISEASE DAY CHANNEL

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Rare Disease Day Official Video 201725.01.20171:37

Rare Disease Day - Ohrid 20178.04.201710:28

Rare Disease Day Official Video 20162.02.20161:52

Campaña FADEPOF 2015 - Día Mundial de las EPOF27.02.20151:22

ORPHAN DRUGS & TREATMENTS CHANNEL

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European orphan designation3.04.201415:50

FDA orphan designation3.04.201431:27

Episode 17 - Future Outlook on the Orphan Drug Market2.01.20146:59

Eric Gervais of Medunik Canada on Canadian orphan drug market at World Orphan Drug Congress USA 201314.05.201312:15

HEALTH POLICY CHANNEL

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European Reference Networks: A Ray of Hope28.06.20178:12

Story of Paula28.06.20174:04

Take&Tell (Official song)13.05.20152:05

EXPANDED NEWBORN SCREENING AISMME8.10.20090:35

NON-ENGLISH VIDEOS CHANNEL

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Nicoleta Nidelea la Fara Prejudecati17.10.201725:28

Es nimmt seinen Lauf22.05.201721:10

Ell@s también existen24.09.201744:29

never forget duchenne13.06.20164:01

WEBINARS

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EURORDIS Webinar: ePAGs 24.10.201727.10.20171:35:47

RDI webinar making rare diseases a UN priority12.10.201757:52

EURORDIS webinar on RD Connect12.10.20171:05:21

Webinar: ERTC symposium European Reference Networks20.09.201757:40