Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Children’s Book ‘Our Baby has Sixty-Five Roses’ Launched by CF Parent From Boom to Bust: Managing Work with CF Ultrasound Can Help Detect Liver Disease in Kids with CF, Study Says Soul Sisters: My Reflections on Mallory Smith’s Memoir Children’s Book ‘Our Baby has Sixty-Five Roses’ Launched by CF Parent Jun 28, 2019 07:00 am | Mary Chapman Children often mistakenly pronounce cystic fibrosis (CF) as “65 roses.” Eilís Moroney and Ruth Cahill, both parents of children with this progressive lung disease, have turned that endearing practice into a book aimed at explaining CF to youngsters in an age-appropriate way. Titled “Our Baby has Sixty-Five Roses,” the book is aimed at helping family members […] The post Children’s Book ‘Our Baby has Sixty-Five Roses’ Launched by CF Parent appeared first on Cystic Fibrosis News Today. Read More From Boom to Bust: Managing Work with CF Jun 27, 2019 09:00 am | Elly Aylwin-Foster Three weeks ago, I gave a guest lecture to the MBA class at the University of Cambridge. The next day, I traveled to Liverpool and appeared onstage with my former cystic fibrosis (CF) consultant at the Cystic Fibrosis Trust Europe Community Afternoon. Two weeks ago, I flew to Berlin to give a presentation, which I […] The post From Boom to Bust: Managing Work with CF appeared first on Cystic Fibrosis News Today. Read More Ultrasound Can Help Detect Liver Disease in Kids with CF, Study Says Jun 27, 2019 07:00 am | Iqra Mumal Ultrasound imaging can be a reliable diagnostic tool for early detection of liver disease in children with cystic fibrosis (CF), a study finds. Using this strategy can help clinicians identify CF patients most at risk for liver damage caused by cirrhosis (tissue scarring), researchers suggest. These findings were reported in the study, “Liver ultrasound patterns […] The post Ultrasound Can Help Detect Liver Disease in Kids with CF, Study Says appeared first on Cystic Fibrosis News Today. Read More Soul Sisters: My Reflections on Mallory Smith’s Memoir Jun 26, 2019 03:00 pm | Ella Balasa A truth binds the lives of two women who have never met. One sees into the other’s soul through her writing — for both women, cystic fibrosis (CF) has been their greatest blessing and most dreadful curse. Reading Mallory Smith’s posthumous memoir, “Salt in My Soul: An Unfinished Life,” has led me to reflect on […] The post Soul Sisters: My Reflections on Mallory Smith’s Memoir appeared first on Cystic Fibrosis News Today. Read More   Recent News Better Access to Relizorb for Patients on Feeding Tubes Advocated by Doctors and Dietitians NORD Honors Industry, Patient Advocates at Rare Impact Awards Gala Diet Tips from a ‘Dying’ Girl Are Anger and Fear Villains, or Must We Acknowledge Them to Thrive? FDA Approves Symdeko for Treatment of CF Children, Ages 6 to 11, with Certain CFTR Mutations