viernes, 28 de junio de 2019

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page

New Articles For BioMed Central:

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases

POSITION STATEMENT

The German National Action League for people with rare diseases: translating the three tiers center system into active co-operation, a one center experience

U. Plöckinger and A. Ziagaki
Orphanet Journal of Rare Diseases 2019, 14:158 | Published on: 27 June 2019

REVIEW

Thiemann disease and familial digital arthropathy – brachydactyly: two sides of the same coin?

Nadirah Damseh, Jennifer Stimec, Alan O’Brien, Christian Marshall, Ravi Savarirayan, Ali Jawad, Ronald Laxer and Peter Kannu
Orphanet Journal of Rare Diseases 2019, 14:156 | Published on: 27 June 2019

RESEARCH

Implementing reflective multicriteria decision analysis (MCDA) to assess orphan drugs value in the Catalan Health Service (CatSalut)

Laura Guarga, Xavier Badia, Mercè Obach, Manel Fontanet, Alba Prat, Atonio Vallano, Josep Torrent and Caridad Pontes
Orphanet Journal of Rare Diseases 2019, 14:157 | Published on: 27 June 2019

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