Cystic Fibrosis Weekly Update

Contents:

Science Literacy Is a Necessity in the CF Community

Jun 10, 2019 09:00 am | Tré LaRosa

“Bill! Bill! Bill! Bill! Bill!” Many millennials immediately recognize the iconic jingle that was the introduction to the educational (and entertaining!) children’s science show “Bill Nye: The Science Guy.” Bill Nye was the only nonacademic exposure to science that some American kids enjoyed. At least, it wasn’t academic in the conventional sense. Nye made science […]
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Candidate Therapy ELX-02 Shows Positive Results in Preclinical and Phase 1 Studies

Jun 10, 2019 08:44 am | Patricia Inacio, PhD

Data from Phase 1 studies in healthy people and preclinical work indicate that ELX-02 may help to treat cystic fibrosis (CF), Eloxx Pharmaceuticals, its developer, reported. The therapy was well-tolerated in single- and multiple-ascending dose studies in those clinical trials, and raised levels of the crucial CFTR protein in patient-derived organoids, data showed. These results were presented […]
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31 Days of CF: Morgan’s Story

Jun 07, 2019 12:00 pm | Luisa Palazola

View this post on Instagram Day 28 of 31 Days of CF ⁣⁣ Topic: Transplant ⁣⁣ ⁣⁣ This is Morgan’s Story ⁣⁣ ⁣⁣ Hello, hello CF buddies! My name is Morgan Cheney and I am 29 years old, 3 years post double lung transplant and feeling great (some kidney and diabetes issues). I went my […]
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