Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Inhaled Imipenem/cilastatin an Alternative Treatment for Lung Infection in Children with CF, Case Reports Show To the Child I’ll Never Have 31 Days of CF: Nick’s Story Kalydeco Restored Pancreatic Function in Boy with CF, Case Report Suggests 31 Days of CF: Genesis’ Story Inhaled Imipenem/cilastatin an Alternative Treatment for Lung Infection in Children with CF, Case Reports Show Jun 12, 2019 07:00 am | Alejandra Viviescas The inhaled formulation of broad-spectrum antibiotics such as imipenem/cilastatin is a useful alternative to treat chronic lung bacterial infections in children with cystic fibrosis (CF) because it causes fewer side effects, two case reports suggest. The study, “Use of inhaled imipenem/cilastatin in pediatric patients with cystic fibrosis: A case series,” was published in the Journal of […] The post Inhaled Imipenem/cilastatin an Alternative Treatment for Lung Infection in Children with CF, Case Reports Show appeared first on Cystic Fibrosis News Today. Read More To the Child I’ll Never Have Jun 11, 2019 03:00 pm | Bailey Vincent “If we had a little girl together, that’s what she’d look like.” He said this to me recently while eating ice cream sundaes with our girls. I slowly turned, a knot in my stomach, scared to look. As I glanced at the little girl in the corner (enjoying time with family), I knew exactly what […] The post To the Child I’ll Never Have appeared first on Cystic Fibrosis News Today. Read More 31 Days of CF: Nick’s Story Jun 11, 2019 12:00 pm | Luisa Palazola View this post on Instagram Day 21 of 31 Days of CF ⁣⠀ Topic: Bridging the gap between clinician and patient⁣⠀ ⁣⠀ Hello, my name is Nick and I have Cystic Fibrosis. I have thrived despite my disease. I am a Registered and Licensed Dietitian with my Master's in Food and Nutrition. I'm also a […] The post 31 Days of CF: Nick’s Story appeared first on Cystic Fibrosis News Today. Read More Kalydeco Restored Pancreatic Function in Boy with CF, Case Report Suggests Jun 11, 2019 07:00 am | Alejandra Viviescas A case report about a 10-year-old boy suggests that Vertex Pharmaceuticals‘ Kalydeco (ivacaftor) can restore the function of the pancreas and the production of pancreatic enzymes in children with cystic fibrosis (CF), leading to a reduction or discontinuation of pancreatic enzyme replacement therapy (PERT). The case report, “Time for a gut check: Pancreatic sufficiency resulting […] The post Kalydeco Restored Pancreatic Function in Boy with CF, Case Report Suggestsappeared first on Cystic Fibrosis News Today. Read More 31 Days of CF: Genesis’ Story Jun 10, 2019 12:00 pm | Luisa Palazola View this post on Instagram Day 23 of 31 Days of CF ⁣⠀ Topic: Late Diagnosis⁣⠀ ⁣⠀ This is @lxvandme experience: ⁣⠀ ⁣⠀ No one ever expects to get diagnosed with a terminal and chronic illness (that should’ve been diagnosed at birth) at 19 years old. I was born at 24 weeks gestation in 1998, […] The post 31 Days of CF: Genesis’ Story appeared first on Cystic Fibrosis News Today. Read More   Recent News Science Literacy Is a Necessity in the CF Community Candidate Therapy ELX-02 Shows Positive Results in Preclinical and Phase 1 Studies 31 Days of CF: Morgan’s Story Slammed by Side Effects: The Downside of Antibiotics Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29