lunes, 24 de junio de 2019

Cystic Fibrosis News Today Weekly Digest


Cystic Fibrosis Weekly Update

Contents:

My Recent Health Revelation Got Me Thinking About Infertility and CF

Jun 24, 2019 09:00 am | Tré LaRosa



infertilityMost clinical manifestations of cystic fibrosis (CF) are in the lungs, pancreas, gastrointestinal tract, and sometimes the sinuses, kidneys, and liver. Unsurprisingly, these concerns attract most of the attention. And CF’s main clinical manifestations should warrant most of the focus. But it’s crucial that we don’t forget the “less serious” parts of living with CF. […]
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Long Use of Inhaled Antibiotics to Treat P. aeruginosa in Children May Raise Risk of Fungal Infection

Jun 24, 2019 07:00 am | Patricia Inacio, PhD



treating lung infectionsLong-term use of inhaled antibiotics, given to treat lung infections caused by the bacteria Pseudomonas aeruginosa  in people with cystic fibrosis (CF), can for young children raise the risk of a new infection by Aspergillus fungi, a study suggests. The study, “Pseudomonas aeruginosa eradication therapy and risk of acquiring Aspergillus in young children with cystic fibrosis,” was published […]
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31 Days of CF: Hannah’s Story

Jun 21, 2019 12:00 pm | Luisa Palazola



View this post on Instagram Day 8 of 31 Days of CF⁣⁣⁣⁣ Topic: Sterilization ⁣⁣⁣⁣ ⁣⁣⁣⁣ From Hannah Campbell or @theferallady⁣ ⁣⁣⁣⁣ I always trusted doctors. Their role once started as parental figures, they grew into friends, humans I could laugh with, share my innermost with. People who listened to me about my body, trusted […]
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31 Days of CF: Chad’s Story

Jun 21, 2019 12:00 pm | Luisa Palazola



View this post on Instagram Day 30 of 31 Days of CF⁣⁣⠀ Topic: Being a Dad with CF⁣⁣⠀ ⁣⁣⠀ This is Chad’s story⁣⁣⠀ ⁣⁣⠀ The Grinch’s heart may have grown three sizes when he discovered that Christmas didn’t come from a store, but I think mine grew ten times when I held each of my […]
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Recent News

My Temporary Foray into the Visible Realm of an Invisible Illness
Orkambi Improves Exercise Tolerance in Adults With Severe CF, Study Shows
31 Days of CF: Gemma’s Story
Avoiding the Pitfalls of Information Overload
Eurordis Unveils Integrated-care Initiative for Rare Disease Patients

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