Cystic Fibrosis News Today Weekly Digest

Cystic Fibrosis Weekly Update Contents: Slammed by Side Effects: The Downside of Antibiotics Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29 31 Days of CF: Becky’s Story Full Disclosure: A Tale of Professional Rejection Investigational CFTR Amplifier PTI-428 Receives Orphan Drug Status in Europe Slammed by Side Effects: The Downside of Antibiotics Jun 07, 2019 09:00 am | Elizabeth Rogers Everyone with cystic fibrosis knows that feeling. Sometimes, it creeps up on you slowly. Other times, it hits right away, like a truck speeding down the wrong side of the highway. That feeling is, of course, caused by side effects from antibiotics. As I sit here, going into week three on orals, it’s something I […] The post Slammed by Side Effects: The Downside of Antibiotics appeared first on Cystic Fibrosis News Today. Read More Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29 Jun 07, 2019 07:00 am | Alice Melão Claire’s Place Foundation is throwing an inaugural fundraising ball June 29 to celebrate the life and legacy of the foundation’s late founder, Claire Wineland, who had cystic fibrosis (CF). Called the Clairity Ball, the event will be held at the Fairmont Miramar Hotel & Bungalows in Santa Monica, California. It will feature a variety of entertainment […] The post Inaugural Clairity Ball Celebrating the Life of Claire Wineland Set for June 29 appeared first on Cystic Fibrosis News Today. Read More 31 Days of CF: Becky’s Story Jun 06, 2019 12:00 pm | Luisa Palazola View this post on Instagram Day 29 of 31 Days of CF ⁣⠀ Topic: A mother’s fear⁣⠀ ⁣⠀ This is Becky’s story: ⁣⁣⠀ ⁣⁣⠀ Let me start by telling you that this has been the hardest thing I have ever tried to share. Days upon days have been spent in tears, revisiting this because saying […] The post 31 Days of CF: Becky’s Story appeared first on Cystic Fibrosis News Today. Read More Full Disclosure: A Tale of Professional Rejection Jun 06, 2019 09:00 am | Elly Aylwin-Foster Disclosure. What a heavy word. While most people have some aspect of their lives hidden from view — or perhaps kept secret — for someone with cystic fibrosis (CF), disclosure can be a particularly anxiety-inducing word. I believe that CF should never be a secret. How can something that has altered our bodies irrevocably be […] The post Full Disclosure: A Tale of Professional Rejection appeared first on Cystic Fibrosis News Today. Read More Investigational CFTR Amplifier PTI-428 Receives Orphan Drug Status in Europe Jun 06, 2019 07:00 am | Alice Melão Proteostasis Therapeutics received orphan drug designation from the European Commission for its investigational CFTR amplifier PTI-428 in development for the treatment of cystic fibrosis (CF). This recognition of the therapeutic potential of PTI-428 in Europe follows previously granted orphan drug, breakthrough therapy, and fast track designations from the U.S. Food and Drug Administration. All of these […] The post Investigational CFTR Amplifier PTI-428 Receives Orphan Drug Status in Europeappeared first on Cystic Fibrosis News Today. Read More   Recent News Manuka Honey Could Be Used to Treat CF Lung Infection P. Aeruginosa, Study Suggests Screwed Over Expectations, Pura Vida, and a New Normal Phage Therapy May Help Resolve Multidrug-resistant Pseudomonas Airway Infections, Case Report Suggests I’m Learning to Prioritize My Mental Health While Working Full-time Vertex Plans to Seek Approval of VX-445 Triple Combo in US and Europe