Cystic Fibrosis News Today Weekly Forum Digest

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Hand sanitizer

Jun 10, 2019 03:41 pm | Tré LaRosa

Replies: 0
Alcohol-based hand sanitizer is one of the most important aspects in a person with CF’s toolkit. Do you carry around hand sanitizer everywhere? Or do you just try to wash them as frequently as possible? Do you feel like it helps, both physically and mentally?

Masks in public places

Jun 10, 2019 03:39 pm | Tré LaRosa

Replies: 0
I know it’s something I have to get better about, but I really have a hard time wearing a mask in public places. I don’t like being stared at. It’s something I’m working on.

Do you wear masks in public places? Do you feel like you have to or do you just like taking the precaution?
Do you feel like people stare at you? Does it bother you? Do you ever say anything to people that stare?
What type of mask do you wear?

Be Like a Yogi and Go with the Flow

Jun 07, 2019 03:53 am | Cystic Fibrosis News Moderator

Replies: 0
After a morning of “pretending to be a yogi,” columnist Hannah Buck reflects on the idea that the universe is trying to help her, not hurt her. Click here to read more from Hannah.
How do you deal with the unpredictability of CF?

The Importance of Personal Healing

Jun 07, 2019 03:52 am | Cystic Fibrosis News Moderator

Replies: 0
In a provocative and introspective column, Hannah Buck encourages her fellow CF warriors to stop picking their metaphorical scabs and allow themselves to heal. Read more from Hannah here.
What wounds do you need to heal? What do you think will help you heal yourself?

How I Learned to Cope with CF at a Young Age

Jun 07, 2019 03:51 am | Cystic Fibrosis News Moderator

Replies: 0
Luisa Palazola says she learned how to cope with the reality of cystic fibrosis from an early age, largely as a result of fear and anxiety. Click here to learn more about her experience.
How did you learn to cope with having CF? What has helped you come to terms with the reality of having a life-long illness?

Screwed Over Expectations, Pura Vida, and a New Normal

Jun 07, 2019 03:50 am | Cystic Fibrosis News Moderator

Replies: 0
Brad Dell once thought he’d never be healthy or independent. Now, post-transplant, he lives in defiance of those expectations. Read more from Brad here.
How have you defied expectations in your own life?

Bacteria and Resistance

Jun 06, 2019 12:10 am | Tré LaRosa

Replies: 0
It’s a common experience in the CF community to wonder about resistance and the bacteria in their lungs.

Do you worry about resistance?
Do you put a lot of weight in your cultures?
How do you feel about resistance and the concern in the CF community?
Importantly – do you understand how resistance develops? And do these questions seem easily answered by your CF doc?

Science literacy

Jun 05, 2019 04:11 pm | Tré LaRosa

Replies: 0
I think it’s fundamentally important that we have at least a base understanding of science.

Do you feel like you’re scientifically literate? In what ways?
What do you wish you were more literate about?
Do you feel like you’ve had a chance to learn?

CF: Pseudomonas Infection Resolved with Phage Therapy, Case Suggests

Jun 05, 2019 12:03 pm | Cystic Fibrosis News Moderator

Replies: 0
Armata Pharmaceutical’s phage therapy candidate AP-PA01 holds promise for treating multidrug-resistant Pseudomonas airway infections, data shows. Read more about AP-PA01 here.
What do you think of this news?