Cystic Fibrosis News Today Weekly Forum Digest

Join the discussion! See below for the latest topics and conversations about CF taking place in our forums. Your voice is needed!

New to our forums? Register here.

Fundraising Ball to Celebrate Life of CF Patient

Jun 25, 2019 03:15 am | Cystic Fibrosis News Moderator

Replies: 0
Claire’s Place Foundation is throwing its inaugural Clairity Ball to celebrate the life of founder and CF patient Claire Wineland June 29 in Santa Monica. Read more about the event here.
Will you be attending this event?

Use These Tips to Make Travelling with Cystic Fibrosis Easier

Jun 25, 2019 12:42 am | Cystic Fibrosis News Moderator

Replies: 1

Traveling with cystic fibrosis can be intimidating, but catch your breath, remember these tips, and embark on your trip with confidence.
Did you find these tips helpful? What other advice would you share from your own experience travelling with CF?

Getting Sick

Jun 25, 2019 12:36 am | Luisa Palazola

Replies: 1
Sometimes when I get a cold or virus, I completely lose all motivation and I struggle to not only recoup from being sick, but getting the confidence I need to go back to my routine. It feels like the virus wipes everything, both physically and emotionally from me.
Have you ever dealt with this?
What helps you?

Slammed by Side Effects: The Downside of Antibiotics

Jun 21, 2019 01:51 am | Marta Ribeiro

Replies: 0
Click here to read Elizabeth Rogers tips for dealing with the many side effects of taking antibiotics, which can make everyday life difficult.
Did you find this article helpful? Do you have any advice or tips of your own to add?

CF Candidate Therapy ELX-02 Shows Positive Results in Early Trials

Jun 21, 2019 01:48 am | Cystic Fibrosis News Moderator

Replies: 0
163Phase 1 studies in healthy people and preclinical work indicate that Eloxx Pharmaceuticals’ candidate therapy ELX-02 may help to treat cystic fibrosis. Click here to read more about it.
What are your thoughts about this news?

The Scenes in ‘Five Feet Apart’ that Broke My Heart

Jun 21, 2019 01:47 am | Cystic Fibrosis News Moderator

Replies: 0
Click here to read Brad Dell’s reflections on the parallels between his life and the CF-centered romance film, “Five Feet Apart.”
Have you seen the movie? If so, what do you think of it?

Science Literacy Is Essential for the CF Community

Jun 21, 2019 01:47 am | Cystic Fibrosis News Moderator

Replies: 0
Tré LaRosa finds that the more he understands the science behind treatments for his disease, the better he adheres to them. Click here to read more from Tré.
Can you relate? Do you enjoy learning about the science of CF and its treatments? Why or why not?

Manuka Honey Could Fight Cystic Fibrosis Lung Infection P. aeruginosa

Jun 20, 2019 05:42 am | Cystic Fibrosis News Moderator

Replies: 0
Click here to more about a study that showed manuka honey produced anti-Pseudomonas activity in an experimental model of lung infection in cystic fibrosis.
Are you intrigued by these findings?

CF: Inhaled Murepavadin Well-tolerated by Lung-infected Mice, Data Show

Jun 20, 2019 05:41 am | Cystic Fibrosis News Moderator

Replies: 0
The investigational antibiotic murepavadin was well-tolerated by mice with a lung infection caused by Pseudomonas aeruginosa, preclinical data show. Learn more here.
What do you think of this news?

Inhalation Powder for CF Patients Introduced to Swiss Market

Jun 20, 2019 05:40 am | Cystic Fibrosis News Moderator

Replies: 0
Under a license agreement with Pharmaxis, EffRx will move to bring Bronchitol (an inhaled dry powder formulation of mannitol) to CF patients in Switzerland. Click here to learn more.
Is this drug available where you live?