Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases | Home page

Orphanet Journal of Rare Diseases

The following new articles have just been published in Orphanet Journal of Rare Diseases RESEARCH A quality improvement program to improve nutritional status of children with Cystic Fibrosis aged 2-12 years old over a 3 year period at CF center Roscoff, Brittany Krista Revert, Laurence Audran, Jocelyne Pengam, Pascal Lesne and Dominique Pougheon Bertrand Orphanet Journal of Rare Diseases 2018, 13:8 | Published on: 8 February 2018 Full Text | PDF RESEARCH Trans-Atlantic collaboration: applying lessons learned from the US CF Foundation quality improvement initiative Kathryn A. Sabadosa, Marjorie M. Godfrey and Bruce C. Marshall Orphanet Journal of Rare Diseases 2018, 13:13 | Published on: 8 February 2018 Full Text | PDF RESEARCH A quality improvement program for adolescents with cystic fibrosis: focus on psychosocial skills Michele Gérardin, Anne Pesle, Dominique Pougheon-Bertrand, Pilar Léger, Céline Vallet, Tiphaine Bihouee and Valérie David Orphanet Journal of Rare Diseases 2018, 13:7 | Published on: 8 February 2018 Full Text | PDF RESEARCH A quality improvement program to reduce the time on the lung transplant waiting list at the Nantes University Hospital Isabelle Danner-Boucher, Véronique Loppinet, Aurore Boxus, Claire Dary, Anne Brigitte Lambert, Marine Prieur, Céline Vallet and Adrien Tissot Orphanet Journal of Rare Diseases 2018, 13:11 | Published on: 8 February 2018 Full Text | PDF INTRODUCTION Strategies for care quality improvement in Cystic Fibrosis Gilles Rault and Pierre Lombrail Orphanet Journal of Rare Diseases 2018, 13:26 | Published on: 8 February 2018 Full Text | PDF RESEARCH Quality of care in cystic fibrosis: assessment protocol of the French QIP PHARE-M Dominique Pougheon Bertrand, Emmanuel Nowak, Clémence Dehillotte, Lydie Lemmonier and Gilles Rault Orphanet Journal of Rare Diseases 2018, 13:10 | Published on: 8 February 2018 Full Text | PDF RESEARCH Lessons from patient and parent involvement (P&PI) in a quality improvement program in cystic fibrosis care in France Dominique Pougheon Bertrand, Guy Minguet, Rémi Gagnayre and Pierre Lombrail Orphanet Journal of Rare Diseases 2018, 13:19 | Published on: 8 February 2018 Full Text | PDF RESEARCH Lessons from the on-site quality audit of data transmitted to the French cystic fibrosis registry Nadine Pellen, Laëtitia Guéganton, Dominique Pougheon Bertrand and Gilles Rault Orphanet Journal of Rare Diseases 2018, 13:9 | Published on: 8 February 2018 Full Text | PDF RESEARCH Long term clinical history of an Italian cohort of infantile onset Pompe disease treated with enzyme replacement therapy Rossella Parini, Paola De Lorenzo, Andrea Dardis, Alberto Burlina, Alessandra Cassio, Paolo Cavarzere, Daniela Concolino, Roberto Della Casa, Federica Deodato, Maria Alice Donati, Agata Fiumara, Serena Gasperini, Francesca Menni, Veronica Pagliardini, Michele Sacchini, Marco Spada… Orphanet Journal of Rare Diseases 2018, 13:32 | Published on: 8 February 2018 Full Text | PDF RESEARCH Introduction of a collaborative quality improvement program in the French cystic fibrosis network: the PHARE-M initiative Dominique Pougheon Bertrand, Guy Minguet, Pierre Lombrail and Gilles Rault Orphanet Journal of Rare Diseases 2018, 13:12 | Published on: 8 February 2018 Full Text | PDF

Follow BMC on: For further information or enquiries please use our contact page details. BMC respects your privacy and does not disclose, sell or rent your personal information to any non-affliated third parties with your consent. Privacy policy. BioMed Central Ltd The Campus, 4 Crinan Street, London, N1 9XW, United Kingdom