Comunidad Vasculitis

Entiende lo que supone vivir con Vasculitis y comparte tu propia historia

Vasculitis Awareness Video

por Vasculitis Foundation publicado hace alrededor de 1 mes

In this video you will learn the devastating impact that vasculitis has on patients around the world. And, you will learn the education, research and support the Vasculitis Foundation brings to the patient and medical communities.

Vivir tu vasculitis con creatividad

por RareConnect team publicado hace 3 meses

Actualmente vivo en Suiza y tengo granulomatosis con poliangeítis (GPA) (antes llamada granulomatosis de Wegener). Me la diagnosticaron en 1.998, cuando tenía 49 años. Cuando recibí el diagnóstico, mi nariz, cuya deformidad se describe técnicamente con el término bastante desagradable de “nariz en silla de montar”, ya estaba afectada. En 2.002 tuve una recidiva, que afectó a los pu...

La vida de Carrie con granulomatosis con poliangeítis

por RareConnect team publicado hace 3 meses

Carrie trabaja en el sector de bienestar y salud. Por tanto, al diagnosticarle granulomatosis con poliangeítis (o de Wegener) en 2.012, hizo lo que mejor sabía hacer: cambiar su estilo de vida para seguir viviendo activamente con su enfermedad. “Hago ciertas cosas que me ayudan a sentirme mejor, además de la medicina tradicional,” afirma. Gallagher ha estado en tratamiento con prednisona...

James Hughes / GPA Wegeners

por Anon publicado hace 4 meses

Imagine that you are participating in Iron Man competitions one day and suddenly you are facing a diagnosis of vasculitis. For James, this is the reality that confronted him in 2005.
James is a superior athlete who has participated in numerous Ironman Competitions. When he received a diagnosis of GPA/Wegener’s James was determined to literally “get back in the race”. In ...

Amanda / Takayasu’s Arteritis

por Anon publicado hace 4 meses

Most people think of Friday the 13th as unlucky. In retrospect, Amanda remembers Friday, May 13th as a day when her life may have been saved thanks to CT Scan that revealed a critical issue—her Carotid Artery was blocked.
In this video, Amanda talks about her “lucky” day on Friday the 13th that lead to finding a cause of her lingering symptoms. She discusses the critical...

Extraordinary Vasculitis Stories

por Anon publicado hace 4 meses

At the beginning of 2012 a Vasculitis Foundation Video Project was announced. The purpose of this effort is to spread awareness by sharing vasculitis stories about some extraordinary people to highlight the impact these chronic conditions have on vasculitis patients and also their families, friends and loved ones. People responded by sending in the video version of their personal vasculitis ...

- See more at: https://www.rareconnect.org/es/community/vasculitis/understand#sthash.eCpWMKSx.dpuf