Biobanks ► Public Health Genomics Knowledge Base (v1.0)

Public Health Genomics Knowledge Base (v1.0)

What's New

Last Updated: Feb 18, 2016

• Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.
  Gainotti Sabina et al. European journal of human genetics : EJHG 2016 Feb (From Genomics & Health Impact Scan Database)
• Participant views on consent in cancer genetics research: preparing for the precision medicine era.
  Edwards Karen L et al. Journal of community genetics 2016 Jan (From Genomics & Health Impact Scan Database)
• Identifying public expectations of genetic biobanks.
  Critchley Christine et al. Public understanding of science (Bristol, England) 2016 Jan (From Genomics & Health Impact Scan Database)
• Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.
  Karlson Elizabeth W et al. Journal of personalized medicine 6(1) (From Discoveries and Insights Database)
• UK biobank: an open access resource for identifying the causes of a wide range of complex diseases of middle and old age.
  Sudlow Cathie et al. PLoS medicine 2015 Mar 12(3) e1001779 (From Discoveries and Insights Database)
• Regulation of Biobanks in France.
  Rial-Sebbag Emmanuelle et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 754-65 (From Genomics & Health Impact Scan Database)
• Spanish Regulation of Biobanks.
  Nicolás Pilar et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 801-15 (From Genomics & Health Impact Scan Database)
• Genomic Databases and Biobanks in Denmark.
  Hartlev Mette et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 743-53 (From Genomics & Health Impact Scan Database)
• Biobanking and Privacy Law in Brazil.
  Dallari Sueli Gandolfi et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 714-25 (From Genomics & Health Impact Scan Database)
• Biobanking and Privacy Laws in Australia.
  Chalmers Don et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 703-13 (From Genomics & Health Impact Scan Database)
• International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).
  Thorogood Adrian et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 690-702(From Genomics & Health Impact Scan Database)
• Genomic Databases and Biobanks in Israel.
  Siegal Gil et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 766-75 (FromGenomics & Health Impact Scan Database)