lunes, 22 de febrero de 2016

Participate online tomorrow & Wednesday - EURORDIS Rare Disease Day events!

EURORDIS is delighted to invite you to participate online in two events this week to mark Rare Disease Day 2016

EURORDIS Awards Ceremony

Tuesday 23 February
17:00-18:30 GMT+1

Watch the EURORDIS Awards Ceremony live tomorrow evening! HRH Princess Astrid of Belgium will present the EURORDIS Awards 2016 at a ceremony in Brussels. You can watch a live web stream of the evening here:

The awards recognise the outstanding commitment and achievements of patient organisations, volunteers, companies, scientists, media and policy makers who have contributed to reducing the impact of rare diseases. Categories are detailed in full

Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease therapies

Wednesday 24 February
10:30-14:30 GMT+1

Participate online in the opening session of this symposium that brings together various relevant stakeholders to discuss the pressing issue of how to improve patients' access to rare disease therapies. Live web streaming available from 10:30 GMT+1 on Wednesday here: 

Speakers include Vytenis Andriukaitis, European Commissioner for Health & Food Safety and Philippe de Backer, Member of European Parliament, Belgium.

Ask questions during the Q&A via the chat box at the above link or via Twitter using
Rare Disease Day 2016 takes place on 29 February. Visit for more information on how you can get involved!
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