miércoles, 13 de julio de 2016

Chromosome 18 Europe | Chromosome 18 Registry and Research Society Europe

Chromosome 18 Europe | Chromosome 18 Registry and Research Society Europe



Chromosome 18 Europe


Our family conference is in Rome over the first week in August – just a few weeks away now. You can see the conference programme here:www.chromosome18eur.org/conference-programme-finalised/
We’d love it if you could come. You can download the registration form to complete and return here or you can register online here (you’ll need to make payment separately). The creche form can be downloaded here. The conference is being held at the Rome Marriott Park hotel and you can find information about booking the hotel here.
We’re holding the cost of conference registration to 24 Pounds / 30 Euros and registration will be open until the conference starts.

Has anyone in your family got a talent? Can you sing, play an instrument or make people laugh?
Well now’s your chance to show off at the 2016 Rome conference!
The talent show will take place during dinner on Saturday 6 August and is open to all ages and abilities. Your talent must be no longer than 3 minutes. The winner will be chosen by the audience (but this is really just for fun!)
Interested? Then email Shereener at shereenerbrowne@yahoo.co.uk with your name and your talent. See you in Rome!

Conference programme finalised

The conference programme is now finalised

Draft conference schedule

The initial conference schedule has been published.

European Conference Update

Welcome to our new and improved website everyone. Your committee are working hard to put the plans in place for the 4th biennial European Conference which will be taking place in Rome from August 5th-7th 2016. This year again we

Rome conference

The 4th Family Conference is taking place in Rome over the weekend of August 5th to 7th 2016. Below is a link to allow you to book rooms in the hotel and a code to add in order to get our special rate. The
Welcome to the Chromosome 18 Registry and Research Society (Europe). We are affiliated to the Chromosome18 Registry and Research Society based in San Antonio, Texas. Our mission is to help individuals with chromosome 18 abnormalities overcome the obstacles they face so they might lead happy, healthy and productive lives.
We aim to bring the latest research done by the Chromosome 18 Registry and Research Society in Texas to people affected by all chromosome 18 disorders and their families in Europe. To do this, we run family conferences where affected children and adults, parents, siblings, relatives, friends and professionals get together to laugh, learn and play together.

Who Are We?

The Chromosome 18 Registry and Research Society (Europe) is a charity set up to bring European families affected by any chromosome 18 abnormalities together to share information and experiences. Our organisation covers all chromosome 18 abnormalities: 18q-, 18p-,Ring 18,Tetrasomy 18p and inversions of chromosome 18.
The charity was founded by an affected woman, her mother and the grandparents of a young boy, all of whom lived near Glasgow. The organisation was registered as a charity in Scotland in 2009 (SC040399). We now have a committee of eight volunteers, all of whom are related to people affected by Chromosome 18 disorders.

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