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Genomics|Features|Surveillance

Surveillance and Registries

Public Health Surveillance in the Genomics Era - January 20, 2015

CDC information: Improving surveillance for chronic diseases

Indicators for chronic disease surveillance — United States, 2013. 
MMWR Recommendations and Reports January 9, 2015 / 64(RR01);1-15

Recent Reviews and Commentaries

Surveillance reports by Michigan Cancer Genomics Program in the Department of Community Health

Technical consultation on harnessing genomics for epidemiological surveillance,  [PDF 330.35 KB] European Center for Disease Control (2014)

SRST2: Rapid genomic surveillance for public health and hospital microbiology labs. 
Michael Inouye et al. Genome Medicine (2014)

Implementing whole genome sequencing to support public health surveillance in Argentina, by Suzanne Rindom (2014)

CDC blog post: Feeling the genomic pulse of the United States 

Surveillance & Registries in Public Health Genomics - August 28, 2014

Facing Our Risk of Cancer Empowered (FORCE) is on a mission to enroll 15,000 people into hereditary breast and ovarian cancer research studies

The Familial Hypercholesterolemia CASCADE Registry:  CAscade SCreening for Awareness and DEtection of Familial Hypercholesterolemia

The Lynch Syndrome Screening Network (LSSN) The vision of the LSSN is to reduce the cancer burden associated with Lynch syndrome

Implementation of validated genomic applications can benefit from public health surveillance & registries-CDC Blog post: Feeling the genomic pulse of the United States (2011)

CDC/ATSDR National Amyotrophic Lateral Sclerosis (ALS) registry and biorepository

CDC birth defects tracking systems

PCORnet: The National Patient-Centered Clinical Research Network

CDC blog post: What gets measured gets done: Genomics, Surveillance Indicators, and Healthy People 2020 objectives

Disease Registries, Genomics & Public Health - September 5, 2013

Implementation of validated genomic applications can benefit from public health surveillance & registries-CDC Blog post: Feeling the genomic pulse of the United States (2011)

The Randomized Registry Trial — The next disruptive technology in clinical research?
Lauer M, et al. New Engl J Med, Sept 1 

CDC information: How cancer registries work

CDC/ATSDR National Amyotrophic Lateral Sclerosis (ALS) registry and biorepository

CDC birth defects tracking systems

Reg4all: Finding ways to improve health with the registry for all conditions