viernes, 26 de febrero de 2016

Join us in making the voice of rare diseases heard!

Join us in making the voice of rare diseases heard!

3 days to go! The 9th edition of Rare Disease Day is 29 February, Join us in making the voice of rare diseases heard! 

You can join by showing your solidarity with millions of patients and families around the world! Patient organisations in over 80 countries are holding events. New countries include AndorraArubaIndonesiaLibyaMauritiusTanzaniaTunisiaUgandaZimbabwe.
The official video is now available in 34 languages and being shared around the world to build awareness of the cause. 
There's still time for your to participate! Contact us!

Join Rare Barometer!
New - Join the panel of Rare Barometer Voices to make your voice heard! Throughsurveys transform your opinions and experiences about topics that directly affect you into figures and facts that can be shared with a wider public.

Break a Guinness World Record!

Break the Guinness World Record and‘Hug for Rare’ this Rare Disease Day! Join the Croatian Alliance for Rare Diseases and ‪#RareDiseaseDay 2016 in breaking the world record for the largest online photo album of hugs. They're collecting photos from the 21 to 27 February, so show your solidarity  and upload your pictures!

Rare Disease Day events in over 80 countries!

Rare Disease Day is truly global and growing! Patient organisations in over 80 countries are holding events for Rare Disease Day, check out what’s happening near you and get involved!


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