Join us in making the voice of rare diseases heard!
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Join Rare Barometer! New - Join the panel of Rare Barometer Voices to make your voice heard! Throughsurveys transform your opinions and experiences about topics that directly affect you into figures and facts that can be shared with a wider public.
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Break the Guinness World Record and‘Hug for Rare’ this Rare Disease Day! Join the Croatian Alliance for Rare Diseases and #RareDiseaseDay 2016 in breaking the world record for the largest online photo album of hugs. They're collecting photos from the 21 to 27 February, so show your solidarity and upload your pictures!
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Rare Disease Day is truly global and growing! Patient organisations in over 80 countries are holding events for Rare Disease Day, check out what’s happening near you and get involved!
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RARE DISEASE DAY IS ORGANISED BY |
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