What Gets Measured Gets Done: Public Health Progress in Familial HypercholesterolemiaPosted on by
- Creation and adoption of a simplified case definition (in addition to formal diagnostic criteria) to help identify potential FH patients, thereby triggering appropriate work-up and treatment.
- Publication of U.S. based scientific statement for FH.
- Adoption of an FH-specific ICD-10 code. (ICD-9 codes for dyslipidemia, such as code 272.0, are not specific for FH and are usually applied to individuals with “garden variety” LDL-C elevations.) An ICD-10 code specifically applied to FH will allow optimal treatment for individuals with FH, help with screening of family members, and increase the ability to track FH patients through electronic health record searches based on ICD-10 codes.
- Establishment of a national FH patient registry. Lack of an actively enrolling patient registry has impeded the ability to collect contemporary data on FH in the United States.