Personal Genomics: Science and Ethics ► Public Health Genomics Knowledge Base (v1.0)

Public Health Genomics Knowledge Base (v1.0)

Personal Genomics: Science and Ethics

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Last Updated: Feb 13, 2016

• Consumers aren’t wild about genetic testing — nor are doctors
  S Begley, Stat News, February 12, 2016 (From Discoveries and Insights Database)
• ‘Only a Click Away – DTC Genetics for Ancestry, Health, Love…and More: A View of the Business and Regulatory Landscape’
  AM Phillips, Applied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Attitudes towards personal genomics among older Swiss adults: An exploratory study
  L Mahlman et al, Aplied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Beyond clinical utility: The multiple values of DTC genetics
  M Turrini et al, Applied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Ethical issues in consumer genome sequencing: Use of consumers' samples and data
  E Niemiec et al, Applied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Personal genomics: Where are We now?
  M Angrist, Applied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Life as a numerator: Putting the person in personal genomics
  S Terry, Applied and Translational Genomics, February 2016 (From Discoveries and Insights Database)
• Adopting genetics: motivations and outcomes of personal genomic testing in adult adoptees.
  Baptista Natalie M et al. Genetics in medicine : official journal of the American College of Medical Genetics 2016 Jan (From Genomics & Health Impact Scan Database)
• Implications of direct-to-consumer whole-exome sequencing in South Africa.
  Lombard Zané et al. South African medical journal = Suid-Afrikaanse tydskrif vir geneeskunde 2016 106(2) 139-40 (From Discoveries and Insights Database)
• Ordering Your Own Lab Tests
  A Swartz, Genome Magazine, January 11, 2016 (From Discoveries and Insights Database)
• Direct-to-consumer Genetic Testing: Changes in the EU Regulatory Landscape.
  Slokenberga Santa et al. European journal of health law 2015 Dec 22(5) 463-80 (From Discoveries and Insights Database)
• Internet-Based Direct-to-Consumer Genetic Testing: A Systematic Review
  L Covolo et al, JIMR, December 2015 (From Discoveries and Insights Database)
• Public Health Genomics (Connecticut)
  Disease: Multiple Diseases; Type: General Information; State: Connecticut (From Implementation Database)
• Public reaction to direct-to-consumer online genetic tests: Comparing attitudes, trust and intentions across commercial and conventional providers.
  Critchley Christine et al. Public understanding of science (Bristol, England) 2015 Aug 24(6) 731-50 (From Discoveries and Insights Database)
• The Rise of DIY Genetic Testing 
  E. Matchar, Smithsonian Magazine, October 13, 2015 (From Discoveries and Insights Database)
• The Scientific Foundation for personal genomics: recommendations from a National Institutes of Health-Centers for Disease Control and Prevention multidisciplinary workshop.
  Khoury Muin J et al. Genetics in medicine : official journal of the American College of Medical Genetics 2009 Aug 11(8) 559-67 (From CDC-Authored Genomics Publication Database)
• Genomic Testing Makes Consumers Less Confident in Understanding Genetics (And That's Probably Okay)
  R Green, Huffington Post, October 2, 2015 (From Discoveries and Insights Database)
• Why you shouldn’t know too much about your own genes
  C. Johnson, wonkblog, September 2015 (From Discoveries and Insights Database)
• Genomics and me
  Despite the hype, DNA testing may not reveal as much about yourself as you would hope. Its real value lies elsewhere, Ben Martynoga, September 23, 2015 (From Discoveries and Insights Database)
• Low-Frequency IL23R Coding Variant Associated with Crohn's Disease Susceptibility in Japanese Subjects Identified by Personal Genomics Analysis.
  Onodera Kei, et al. PloS one 2015 0 (9) e0137801 (From HuGE Literature Finder)