2nd Multi-Stakeholder Symposium on Improving Patient Access to Rare Disease Therapies

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Would you like to be a part of a truly multi-stakeholder process aiming to establish sustainable and long-lasting solutions to improve patients’ access to rare disease therapies?

This Symposium on Improving Patient Access to Rare Disease Therapies will bring together patient advocates, payers, HTA bodies, academics, clinicians, policy makers, investors and industry representatives. It will enable participants to understand the interests and challenges of each stakeholder group, to discuss current and emerging initiatives and to continue to work together to improve patients’ access to rare disease therapies.

There are limited places available for this Symposium, please register via the form below.

See the preliminary programme and more information (venue, travel & accommodation, etc.).

All patient representatives will have their fee waived for this event. Payer bodies, HTA agencies, national competent authorities, regulators or government workers should contact emilie.zingg@eurordis.org to register for this event.

Register here: