miércoles, 1 de abril de 2015

INVITATION: ‘Communications & PR for Small Patient Groups’ Workshop – 17th April | Findacure

INVITATION: ‘Communications & PR for Small Patient Groups’ Workshop – 17th April | Findacure
Información de interés para los pacientes y sus representantes
Taller ‘Comunicaciones y PR para pequeños Grupos de Pacientes’ 17 de abril, Londres


INVITATION: ‘Communications & PR for Small Patient Groups’ Workshop – 17th April

As part of Findacure’s series of trainings for patient groups, our next workshop will be taking place on Friday, 17th April, on the topic of communications and public relations (PR).
The workshop will be a half-day event from 1:30pm to 5:30pm in central London (near Oxford Circus station). The day will explore different communications and PR methods patient groups can employ to raise awareness of their condition and work. Throughout the day, there will be short group discussion sessions where delegates will be able to share their own experiences and work together to apply the advice from the day to their own organisations. To see the schedule for the workshop, please click on the image.
If you would like to attend, please email Flóra (flora@findacure.org.uk) by Sunday, 5th April 2015.
“Communications & PR for Small Patient Groups” Workshop
Rosalind Paget Room, Royal College of Nursing, 20 Cavendish Square, London, W1G 0RN
17th April 2015, 1:30pm – 5:30pm

1:30 – 2:00pm Registration
2:00 – 2:10pm Welcome from Findacure
2:10 – 2:40pm “The importance of social media for rare disease patient groups” – Sorsha Roberts, AKU Society
2:40 – 3:10pm “Working with the media” – Stefania Rucci, Say Communications
3:10 – 3:30pm Discussion session
3:30 – 4:00pm Tea/Coffee break
4:00 – 4:30pm “Imparting the unheard of: communicating about rare diseases” – Anastasios Koutsos, Ogilvy Healthworld
4:30 – 5:00pm “How to create awareness days and use existing international campaigns to benefit patient groups” – Lara Chappell, EURORDIS
5:00 – 5:20pm Discussion session
5:20 – 5:30pm Conclusion of workshop

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