miércoles, 3 de diciembre de 2014

EODD Landing page, Informa Healthcare

EODD Landing page, Informa Healthcare





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Accede a la Opinión del Experto en Medicamentos Huérfanos de forma libre hasta el 26 de diciembre. Los artículos incluyen las aportaciones de EURORDIS sobre el impacto de las enfermedades raras


This themed issue has been organised in partnership with EURORDIS (European Organisation for Rare Diseases) and NORD (National Organization for Rare Disorders). The purpose of this themed issue is to improve the scientific community’s understanding of the important issues surrounding rare diseases and the impact they have on the lives of patients.

The issue includes pieces covering the importance of raising awareness and sharing family experiences on coping and caring for a child affected by a complex rare disease; creating patient communities; promoting policies and support in favour of research on rare and genetic diseases; promoting better standards of diagnosis and care; and easier access to cross-border care for patients affected by rare diseases. Throughout, it will highlight areas where it makes sense to work collaboratively and  at the international level.

For a limited time, you can access content from this themed issue for Free below
PLEASE NOTE THESE ARTICLES ARE FREE TO ACCESS UNTIL DECEMBER 26TH 2014



Read More: http://informahealthcare.com/page/free_access_EODD




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